No Progress

So far no progress. The endocrinologist I saw agrees with the EB diagnosis basis on my high titers. She also saw no current issues with my thyroid based on my labs since Dr. Lerner put me on synthroid. She did suggest I get tested for prenicious anemia (an autoimmune disease different than anemia) based on a family history of it and the size of my red blood cells. I am currently waiting for those results.

I saw Dr.Lerner two weeks ago and he added Tagmet to the Valtrex that he has me on for EB (and the topomax and inderol for headaches). He explained that it would be kind of like a booster to the Valtrex. Within a week on the Tagamet I started getting very dizzy and throwing up. I also started feeling depressed. I thought this was just because of my seemingly downhill circumstances. However, after several days of vomiting I looked up the side effects of Tagamet and I found out that 74% of people feel nauseous the first month they use it and that depression is the number one side effect. I stopped taking it immediately.

We seemed to have hit a fork in the road and are not sure which way to go. We are clinging to His promises:

Isaiah 40:31
but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.