I have not written in a while because not much has changed. I am on the maximum dose of Valcyte (1800mg/day) and spend most of my time resting in my recliner or sleeping in my bed. I am very fatigued throughout the day and in a lot of muscle pain in the evening. I continue to see Dr.Lerner at least 1x/mo to get EKG and blood tests to make sure all is well. I hope to report some positive changes soon.
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