The waiting continues. The head pressure is constant. About three weeks ago when Jim came home from work I was in absolute agony with head pain. I didn't know if I was going to have to go back to the ER. He got on the phone and started calling places nearby to try to get me a massage. Anything to try to get some relief. The only thing he could find that time of night was a 15 minute chair massage. Was it really worth it? We decided it was and I drove 2 miles to the place. When I got there the woman told me that she specialized in migraines because she used to have brain cancer and she had migraines that lasted for days so she now wanted to help people with headaches. Wow. Thank you, God, for sending me to the right person.
When I saw her again she had done some research on CF and said that the reason I feel so much pressure is because the lactic acid builds up in my body from not moving around. And then it travels upward and lands in my head. Quite a problem when I'm not able to move around to fix the problem. I'm seeing her about once a week and am able to get relief for about 2-3 days afterward. I am also trying to do about 10 minutes of stretching a day to try to get the blood flowing.
It is tough to try to find the balance between moving enough to keep my body from getting sore and too much that it gets headaches/pain. Right now I can do about 2-4 hours a day. That pretty much includes getting the kids dressed and breakfast and then off with the sitter 9-1, playing with them for an hour after their nap or movie and fixing them dinner before Jim gets home. Everyday Grant begs me to play more. I have to remind myself this is not forever.
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